My last post was March 11^th and there’s been a lot going on since then. The evening of Tuesday the 16^th I was introduced to some excruciating pain. We had my doctor on the phone and added pain med patches throughout the night and into Wednesday to try to get it under control. A lot of this I don’t remember any more so you’ll probably be getting highlights. I had radiation treatments Thursday and Friday, so by scooting down the stairs and the use of a wheelchair I was able to complete those, but not without a good deal of pain. We had discussions with the doctors about the pain and specifically the pain associated with the radiation and decided to discontinue the radiation treatments, my body just wasn’t able to tolerate it. Throughout this time my world had been reduced to a reclining chair in the bedroom, which is also my bed because of the pain involved getting into and out of bed, and the bathroom.

My doctor had wanted to start chemo after radiation was complete, but we determined that my body was probably too weak to withstand the high dose chemo they’d suggested. So my options are pretty limited. We’ve signed up for Hospice services with the intention of getting me stronger so we have options. Don’t confuse Hospice with giving up, we’re not giving up.

One of the side effects of the pain meds is loss of clarity of thought (which is probably pretty evident as you read this!). The time it takes me to put this posting together is almost embarrassing, not to mention how exhausted I am afterwards.

I’ll try to keep you updated, but bear with me.