So today was supposed to be a pretty easy day. Start with treatment 12, no problem. 45 minutes later, occupational therapy. Noticeable improvement again in both arms, adding additional exercises and weights. Then we went to meet the new hematology/medical oncologist. The appointment was at 10:00 a.m. and we didn't see the doctor until after 11:00. The next 2 hours seemed like we were doing nothing but waiting, except for the time spent giving half my blood supply ( 5 tubes) I gave for lab work. The doctor confirmed that the final path report indicated either plasmacytoma, which includes other possibilities or plasmablastic lymphoma. I know, it doesn't sound much like a "final report" when it doesn't offer a definite answer. What that means is more testing. We need to determine if there are any other diseased sites before finalizing a treatment plan. Tomorrow I'll have my radiation treatment in the morning, then go back in the afternoon for a bone marrow biopsy. I could have the biopsy in the doctors office, no pain meds, or in the hospital with the good stuff. I always like to think of myself as a tough guy, but it didn't take me long to decide to to take the juice!
Then more testing next week. Monday I've got radiation treatment, occupational therapy, follow up with the neurosurgeon, a skeletal scan, and a PET scan. I actually get Tuesday off from everything! Wednesday has treatment & therapy and Thursday we review the results from all the tests.
Today was the first day in a while that I was really tired, and I think a lot of it was due to all the waiting we did. I took about a two hour nap and felt really good afterwards. This evening we went to niece Jadan's 2nd grade Dr. Seuss musical. She did great and acted like she was really having fun!